I appreciate all of you that expressed your warm and deepest concerns. Thank you!
I did not write the post to generate a pity party, but to let my community and fellow Bloggers know a bit more of me and the pitfalls of living with Complex Reginal Pain Syndrome. Doctors are still clueless and there is no cure for it. Somedays are ok and some, well, you would just rather have a Root Canal done.
In light of this, I still am trying to rejoin the workforce and have a few apps out. We will see!
Before I was diagnosed with this condition. I do admit I used to make light of people that claimed they had such pain to the ones that had Fibromyalgia which is completely different from CRPS. This post will be to bring some awareness about this CRPS.
When I wear certain shirts they can feel like needles pricking the skin or rough sandpaper rubbing back and forth. So, I don’t care what people may think of me for the way I dress these days, I wear clothing items that feel comfortable. If you wish to view this video, here is the link, https://www.youtube.com/watch?v=6YPKAycw7MQ this is a 36-minute video from, Sharon Weiner, RSDSA Board of Directors and President of Living with RSDS, Inc. and Barby Ingle, Power of Pain Foundation share techniques and ways to live better despite having CRPS.
This link is from a 2008 CNN broadcast where the Doctor says, they don’t know much about it. This story is about a 14-year-old girl that got bit by a spider in her leg that caused her to obtain this freak of nature condition. The Mother was distraught and put her daughter into a comma. I don’t think I would go through anything that drastic. The video is 6 minutes and 13 seconds. They also show how the pain stared in one area and moved to other regions.
If you have heard of a talk show called the Doctors Show, then you may have seen this about a woman who has it in her leg, red and swollen. Video length: 4:41